By Suzanne Potter, Producer, Public News Service
A bill just introduced in Congress would raise public awareness of issues surrounding the end of life, including palliative care, and hospice.
The Compassionate Care Act would establish guidelines for advance care planning between health providers and patients.
Lisa Pahl, a licensed clinical social worker from Torrance, guides families through hospice.
“We live in a culture that is very avoidant of conversations on death and dying,” Pahl observed. “Public education around the importance of planning ahead will improve access, so that everyday Americans know to ask for hospice and palliative care.”
The bill would direct the government to develop education resources for providers, expand telehealth options and facilitate a study of a national advance care planning registry, which would allow patients to transfer their advance directives from state to state.
Pahl encouraged people to spell out what they want at the end of life so their relatives do not have to make expensive and painful decisions.
“Unless we have these conversations, we won’t know,” Pahl pointed out. “Health care providers typically will err on the side of doing it all, rather than going with comfort measures.”
The bill is co-sponsored by Rep. Nanette Barragán, D-Calif., and Sen. Richard Blumenthal, D-Conn. A similar bill stalled in the House of Representatives in 2020 and never got a vote.
